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Old 01-25-2007, 06:40 PM
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BEGLET BEGLET is offline
In Memorium
 
Join Date: Sep 2006
Location: So Cali
Posts: 661
15 yr Member
BEGLET BEGLET is offline
In Memorium
BEGLET's Avatar
 
Join Date: Sep 2006
Location: So Cali
Posts: 661
15 yr Member
Default Good Grief Charlie Brown!

Wings - I've had all the testing on the Liza Jane Spreadsheets - no evident auto-immune markers there at all...... (including all the anti-nuronal anit-b's, inherited, etc. etc.) - had a positive amyloid biopsy 3 years ago but when I tried to have it confirmed by "experts" (there were none out here at the time - had biopsy sent to Boston) - Boston didnt feel comfortable confirming because they didnt have any unstained tissue to test and the second one negative...however, now we have our own "expert" in So. Cal. thank goodness - he treats almost exclusively Multiple Mylenoma and amyloid patients (they are experienting with similar treatments for both - high dose chemo - analogous stem cell transplant - etc. very radical stuff).... so I finally have a doc that sees this frequently... he says I fit right in with the pack.... I hope not....

Silverlady - consider myself hugged

Last edited by BEGLET; 01-25-2007 at 06:50 PM.
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