Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 01-25-2007, 06:40 PM #4
BEGLET's Avatar
BEGLET BEGLET is offline
In Memorium
 
Join Date: Sep 2006
Location: So Cali
Posts: 661
15 yr Member
BEGLET BEGLET is offline
In Memorium
BEGLET's Avatar
 
Join Date: Sep 2006
Location: So Cali
Posts: 661
15 yr Member
Default Good Grief Charlie Brown!

Wings - I've had all the testing on the Liza Jane Spreadsheets - no evident auto-immune markers there at all...... (including all the anti-nuronal anit-b's, inherited, etc. etc.) - had a positive amyloid biopsy 3 years ago but when I tried to have it confirmed by "experts" (there were none out here at the time - had biopsy sent to Boston) - Boston didnt feel comfortable confirming because they didnt have any unstained tissue to test and the second one negative...however, now we have our own "expert" in So. Cal. thank goodness - he treats almost exclusively Multiple Mylenoma and amyloid patients (they are experienting with similar treatments for both - high dose chemo - analogous stem cell transplant - etc. very radical stuff).... so I finally have a doc that sees this frequently... he says I fit right in with the pack.... I hope not....

Silverlady - consider myself hugged

Last edited by BEGLET; 01-25-2007 at 06:50 PM.
BEGLET is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
? of Amyloidosis Again - Yikes BEGLET Peripheral Neuropathy 15 09-23-2013 09:21 PM
Genetic Testing Missyat Epilepsy 3 12-26-2009 11:41 PM
HLA Testing anon20160317 Gluten Sensitivity / Celiac Disease 6 11-08-2006 12:04 PM
Self-testing NancyM Gluten Sensitivity / Celiac Disease 0 09-11-2006 12:47 PM


All times are GMT -5. The time now is 01:26 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.