View Single Post
Old 05-28-2010, 09:00 AM
Mere's Avatar
Mere Mere is offline
Member
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Mere Mere is offline
Member
Mere's Avatar
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
Default

Cyclelops and Glenntaj, Yes, I do feel that there was a 'trigger' - probably the monoclonal virus. In terms of appearance, people have always made the comment "You look so healthy". Maybe the flushing helps my appearance in that regard. It does rather **** me off though if I am feeling poorly and someone says that. It seems condescending. If people ask what my problem is, I will usually tell them that I have a type of lupus that affects different parts of my body.

I do have fibromyalgia and have had that diagnosis for years, but I don't mention that to anyone because 'erveryone' now has fibromyalgia. If people are overstrssed or tired I hear "I must have fibromyalgia". Don't get me wrong... I am pleased that there is a new found awareness on FMS. But for crying out loud, some people can be so easily jaded into thinking they have a serious problem... perhaps after watching a Lyrica commercial and thinking "oh yes, I do have some tenderness in my muscle there (pointing)". I really don't think that FMS is as prevalent as is seems. I swear, just a few weeks ago my neighbor said she was a bit run down and tired and that she must have fibromyalgia. I wanted to laugh in her face and say "are you kidding?". My husband just looked at me and rolled his eyes.

Mere

Mere
Mere is offline   Reply With QuoteReply With Quote