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Old 05-28-2010, 09:00 AM #9
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Mere Mere is offline
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Join Date: Jul 2008
Location: A Beautiful Town in Maryland
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Mere Mere is offline
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Mere's Avatar
 
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
15 yr Member
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Cyclelops and Glenntaj, Yes, I do feel that there was a 'trigger' - probably the monoclonal virus. In terms of appearance, people have always made the comment "You look so healthy". Maybe the flushing helps my appearance in that regard. It does rather **** me off though if I am feeling poorly and someone says that. It seems condescending. If people ask what my problem is, I will usually tell them that I have a type of lupus that affects different parts of my body.

I do have fibromyalgia and have had that diagnosis for years, but I don't mention that to anyone because 'erveryone' now has fibromyalgia. If people are overstrssed or tired I hear "I must have fibromyalgia". Don't get me wrong... I am pleased that there is a new found awareness on FMS. But for crying out loud, some people can be so easily jaded into thinking they have a serious problem... perhaps after watching a Lyrica commercial and thinking "oh yes, I do have some tenderness in my muscle there (pointing)". I really don't think that FMS is as prevalent as is seems. I swear, just a few weeks ago my neighbor said she was a bit run down and tired and that she must have fibromyalgia. I wanted to laugh in her face and say "are you kidding?". My husband just looked at me and rolled his eyes.

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