I was sent out to so many Drs. and none could diagnose me. My PCP told me he wanted me to go and get a computer and help him diagnose me. It turned out he and my PA had only had one other RSD patient in their 20 years each of practice. Someone on the TOS forum actually told me what I had. I then went back and told my PCP and PA and they jumped right on it. Don't think they hadn't tried diagnosing me though. I then went up to see my TOS surgeon who sent me to a hand surgeon that was very up on RSD and he recommended a diagnostic block but in the meantime diagnosed me on paper with it along with TOS, Ulner, radial, rotator cuff, and carpal tunnel syndromes. So I guess you could say it was a very smart hand surgeon. This was before Anesteolgist got into blocks in their offices, and PM Drs. to me have found a job that can put big bucks in their pockets.

My PCP does all of my care though. He finally got tired of sending me out to Drs. that didn't know what they were doing and told me he'd just take care of me. He is a Sports Medicine Dr. and does councelling. Has taken care of high school students for years in sports. He gives me any meds I need and does research all of the time on RSD and other things.

I had no luck with Neurologist. If they can't see it on a test most of them don't believe you have it. I didn't have luck with PM Drs. either. My favorites were Anesteologist. It goes back to how much a Dr. knows about RSD or wants to learn about it.

Ada