I was sent out to so many Drs. and none could diagnose me. My PCP told me he wanted me to go and get a computer and help him diagnose me. It turned out he and my PA had only had one other RSD patient in their 20 years each of practice. Someone on the TOS forum actually told me what I had. I then went back and told my PCP and PA and they jumped right on it. Don't think they hadn't tried diagnosing me though. I then went up to see my TOS surgeon who sent me to a hand surgeon that was very up on RSD and he recommended a diagnostic block but in the meantime diagnosed me on paper with it along with TOS, Ulner, radial, rotator cuff, and carpal tunnel syndromes. So I guess you could say it was a very smart hand surgeon. This was before Anesteolgist got into blocks in their offices, and PM Drs. to me have found a job that can put big bucks in their pockets.

My PCP does all of my care though. He finally got tired of sending me out to Drs. that didn't know what they were doing and told me he'd just take care of me. He is a Sports Medicine Dr. and does councelling. Has taken care of high school students for years in sports. He gives me any meds I need and does research all of the time on RSD and other things.

I had no luck with Neurologist. If they can't see it on a test most of them don't believe you have it. I didn't have luck with PM Drs. either. My favorites were Anesteologist. It goes back to how much a Dr. knows about RSD or wants to learn about it.

Ada

I actually had no injury of any kind that started RSD in me. It started on the bottoms of my feet. I had numb spots.......felt like i walked on rocks but without any kind of pain at first. That went on from appoximately April 03 until Nov 03. My sensory perception on the bottoms of my feet was totally wonky. Then woke up on the Tuesday before Thanksgiving in 03, sat up on the side of the bed, went to stand & the burning pain hit & has never gone away since. They think, but are not sure, that it probably started with previous & then on going injury to my lumbar spine. Now i have had 2 major back surgeries but neither one put my RSD into remission or alleviated it one bit. The thing the surgeries alleviated was, first surgery in 11/05 extensive back pain (altho it still hurts when I am up too long or over due it), the probability that I was going to become paralyzed from the waste down & some leg pain. Second surgery 6/09 alleviated extensive right leg sciatic pain. Did nothing for RSD pain at all. But they still think my horribly bad spine might have caused the RSD to start in my feet. Now we believe it to be CNS pain also.

Anesthesiologist are who at first diagnosed me.

DebbyV