Quote:
Originally Posted by dmplaura
My doctor was flat out honest about CCSVI and the procedure. Her friend who's more progressed (EDSS) with her MS had the CCSVI procedure done, was doing better, and then a few months later crashed and burned, and was worse than before.
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This is exactly what I was talking about. I want to see what happens to folks MONTHS after doing this. if not years. Adrenaline is a powerful drug and can cause a mother to lift a car off a trapped toddler. I am sure it can raise an MS patient out of their chair, esp with the hope factor.
I hate to sound like a negative nelly, but I rarely see the videos of these folks even two weeks later. We see them before, and then on their way to, and then just after the proceedure. They describe it in great detail, but 2 days out...we lose them. Are they afraid speaking the truth will discrourage those who go behind them? I would rather know the whole truth, instead of folks going to the opposite extreme in trying to protect me.