My doctor was flat out honest about CCSVI and the procedure. Her friend who's more progressed (EDSS) with her MS had the CCSVI procedure done, was doing better, and then a few months later crashed and burned, and was worse than before.

With that said, my symptoms are very different than the symptoms this lady has, and my doctor said it's definitely worth considering in my case. I received a call from a reference my doctor sent my way, however I haven't had a chance to call back due to being so busy, but it's to discuss the procedure being done in Poland.

I won't pay to go to Poland, or for the procedure. I'll wait for it in Canada. Until then, I'll play my cards in my homeland .

Reason why people relapse I believe is from the vein not keeping it's stretch. Stent should be forever. Pharmacist I turned on to ccsvi told me his news letter said dissolve-able stents will be out in 3 yrs. I don't have 3 though. Let us know how the mri goes Aarcyn. I only had doppler done by non-zamboni-trained tech and I hear thats ng. I also was told by pharmacist when I said my left is 8mm and right 4mm, he said left is bigger because of heart side. Scans that I found online that may possibly show everything well is CT Angiography. Check out pics of that online. Here's some ccsvi links I posted once before:

9gabbycats
PRE http://www.youtube.com/watch?v=JO3Dn...eature=related
POST http://www.youtube.com/watch?v=KYNhYtVojSQ&NR=1

brendaraven
PRE http://www.youtube.com/watch?v=Kj9aQ...eature=related
POST http://www.youtube.com/profile?user=.../4/GwGsrePGYis

kezzcass
PRE http://www.youtube.com/profile?user=.../6/9M5YI7go9Qo
DURING http://www.youtube.com/profile?user=.../6/9M5YI7go9Qo
POST http://www.youtube.com/profile?user=.../6/9M5YI7go9Qo
POST http://www.youtube.com/watch?v=TtSzG...eature=channel

mammananny
PRE http://www.youtube.com/profile?user=.../8/lcHTdxa_hGQ
POST http://www.youtube.com/watch?v=zk3ydRbChDg
POST http://www.youtube.com/watch?v=JpM7t...eature=related

n33m5
PRE http://www.youtube.com/user/n33m5#p/a/u/1/GH3Ipk8tyVA
POST http://www.youtube.com/user/n33m5#p/a/u/0/PEt5L9oSVe0

z1sargent
PRE http://www.youtube.com/user/z1sargent#p/u/3/HnkLf0aIoVA
POST http://www.youtube.com/user/z1sargent#p/u/1/TjVmSae6qJw

jimmlai
PRE http://www.youtube.com/user/jimmlai#p/u/6/f8uVac1JH-k
POST http://www.youtube.com/user/jimmlai#p/u/2/uJKltquO7Eo

This is exactly what I was talking about. I want to see what happens to folks MONTHS after doing this. if not years. Adrenaline is a powerful drug and can cause a mother to lift a car off a trapped toddler. I am sure it can raise an MS patient out of their chair, esp with the hope factor.

I hate to sound like a negative nelly, but I rarely see the videos of these folks even two weeks later. We see them before, and then on their way to, and then just after the proceedure. They describe it in great detail, but 2 days out...we lose them. Are they afraid speaking the truth will discrourage those who go behind them? I would rather know the whole truth, instead of folks going to the opposite extreme in trying to protect me.

I asked my Neuro about CCSVI when I had my appointment last month. He wasn't impressed with it at all and discouraged me from even getting my hopes up. But.....he's sort of negative about everything except the DMD's that have been around forever (and don't work that well ). He did listen to my heart and put the stethoscope up to each side of my neck but said everything sounded OK. He's the same abut LDN, too. Thinks nothing works but the things that cause a zillion side effects. I'm beginning to think that these doctors have an agreement with big pharma to keep everyone gainfully employed!

Exactly, Dej, that's my question too. A few months after the procedure, the CCSIV patients all seem to vanish???

Maybe we should all put a video on YouTube asking what the long term prognosis is with the people who have had it done.

If I had it done.....and it worked.....you better believe I'd be posting 1, 2, 3, 4, etc. month follow up videos to prove it to the doubters. Makes me wonder why nobody has bothered to put up a post-op video....and not just one the following day.

I mentioned ccsvi to my new neuro #4 or 5 now and his reply was along the lines of farse. I said nooo..(as my high opinion of him was about to fall) "what about all the utube videos? they're not faking". He said if it makies me happy to keep looking into it.

I mentioned it to a world known surgeon while I was in NY over summer and he said if I need it - don't hesitate. Simple procedure said he. His walls are covered with awards and magazines with him on them though so simple to him may not be to others.

What do you's think about the dissolvable stents coming out in 3 yrs?
I don't see how people could relapse unless the vein was just stretched for quick fix and reshrunk. Think about it.
I'd certainly roll the dice with metal stent tomorrow if I knew I'd stop progressing but that's me.