hi april and welcome to NT,

wow, you've been thru so much. it's a lot to handle.
i'm not familiar with small fiber neuropathy but it looks like you deal with pain.
i do too (from MS) so i can empathize with you.

in '08 i was dx'd with breast CA. thankfully it was caught early and i've been fine since them. however, i know what it's like to get very disturbing news, then to schedule test after test and wait for the results.

what helped me is to try to take only 1 day at a time, 1 test at a time etc.
worrying about the future can make you crazy with fear and in the end it doesn't help. i know that's a tall order.

write down your Q's and make sure you get answers when you go to the dr.
bring a friend or family member with you if possible for a 2nd set of ears.
it sounds like as of right now you're ok and in a holding pattern.

please let us know how you are.