hi april and welcome to NT,

wow, you've been thru so much. it's a lot to handle.
i'm not familiar with small fiber neuropathy but it looks like you deal with pain.
i do too (from MS) so i can empathize with you.

in '08 i was dx'd with breast CA. thankfully it was caught early and i've been fine since them. however, i know what it's like to get very disturbing news, then to schedule test after test and wait for the results.

what helped me is to try to take only 1 day at a time, 1 test at a time etc.
worrying about the future can make you crazy with fear and in the end it doesn't help. i know that's a tall order.

write down your Q's and make sure you get answers when you go to the dr.
bring a friend or family member with you if possible for a 2nd set of ears.
it sounds like as of right now you're ok and in a holding pattern.

please let us know how you are.

My Neurologist mentioned the word Amyloidosis as a possible cause of my neuropathy, which will require more biopsies to confirm. I've decided to seek out a specialist in this area. I'm so scared & confused. I like the Neuro. I'm seeing now but she doesn't seem to get in any hurry to get me answers. And she doesn't seem to know a whole lot about the disease. Everything I've read says the sooner you confirm a diagnosis & begin treatment the better. I don't want to find out later that if my doctor had been more agressive things would have turned out differently.
Maybe I'm over-reacting but I say better SAFE than SORRY!

How about a late hello!

Glad you came to NT. IT's a great place to find support and answers.

Ask and ask again until you do understand. When it's complicated it seems to take a lot longer to understand your condition. I know fear is a bad thing to deal with. The unknown is scary. WE do understand.

I hope you find some answers and get a treatment plan going soon.