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Originally Posted by Judy
Thank you so much, JM, for answering all of my questions! I imagine it does seem like a miracle to you, having your life back.
I wonder if age has anything to do with the success of the procedure? You sound pretty young -- I just turned 67 last month and have been diagnosed for 20 years. In hindsight, I'm sure it started 14 years previous to that after the birth of my third child and optic neuritis. I feel very fortunate that it stayed in remission all the years my kids were growing up so I could do all the usual crazy things with them!!! Have been in this chair the past five years and can barely slide my feet backward to transfer. Are you familiar with anyone in similar circumstances who had the procedure and what was the outcome?
Do you know of anywhere in the US or Canada that performs this procedure successfully? Traveling a great distance is out of the question for me at this stage, so it has to be somewhere a little closer.  One of my big symptoms has been nerve pain right from the beginning and nothing takes it away -- except being totally knocked out!! I would give just about anything to feel "normal" again and be able to go for a "walk".
Sorry to be such a nuisance asking all these questions, but I'm really interested and don't have the energy to do all the research myself. I'm so glad you found us -- even though you're in a different "class" now!!! YAY!!!! |
No one in Canada is allowed to perform the procedure. Damn government. There are a fair number of doctor's doing it in the US and a couple of places in Mexico. I'd highly recommend you get yourself on facebook and check out the CCSVI pages there. LOTS of info. thisisms.com also has a great CCSVI forum.
I am almost 34, so yes, younger than you. I do know of a good number of people who are much older than me who have also had good results. Once you get on the facebook CCSVI sites you'll see literally hundreds of articles from North American newspapers with success stories. It's estimated now that some 5,000 people worldwide have been treated for CCSVI.
A family member of mine referred another person for treatment. He was in a chair and bad off. He has now improved to the point where he can do his own transfers. Have also seen reports of previously chair bound people being able to use walkers now.
Where are you located??