Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 11-12-2010, 05:28 PM #25
jacksonsmommy jacksonsmommy is offline
Junior Member
 
Join Date: Aug 2008
Posts: 85
15 yr Member
jacksonsmommy jacksonsmommy is offline
Junior Member
 
Join Date: Aug 2008
Posts: 85
15 yr Member
Default

Quote:
Originally Posted by Judy View Post
Thank you so much, JM, for answering all of my questions! I imagine it does seem like a miracle to you, having your life back.

I wonder if age has anything to do with the success of the procedure? You sound pretty young -- I just turned 67 last month and have been diagnosed for 20 years. In hindsight, I'm sure it started 14 years previous to that after the birth of my third child and optic neuritis. I feel very fortunate that it stayed in remission all the years my kids were growing up so I could do all the usual crazy things with them!!! Have been in this chair the past five years and can barely slide my feet backward to transfer. Are you familiar with anyone in similar circumstances who had the procedure and what was the outcome?

Do you know of anywhere in the US or Canada that performs this procedure successfully? Traveling a great distance is out of the question for me at this stage, so it has to be somewhere a little closer. One of my big symptoms has been nerve pain right from the beginning and nothing takes it away -- except being totally knocked out!! I would give just about anything to feel "normal" again and be able to go for a "walk".

Sorry to be such a nuisance asking all these questions, but I'm really interested and don't have the energy to do all the research myself. I'm so glad you found us -- even though you're in a different "class" now!!! YAY!!!!
No one in Canada is allowed to perform the procedure. Damn government. There are a fair number of doctor's doing it in the US and a couple of places in Mexico. I'd highly recommend you get yourself on facebook and check out the CCSVI pages there. LOTS of info. thisisms.com also has a great CCSVI forum.

I am almost 34, so yes, younger than you. I do know of a good number of people who are much older than me who have also had good results. Once you get on the facebook CCSVI sites you'll see literally hundreds of articles from North American newspapers with success stories. It's estimated now that some 5,000 people worldwide have been treated for CCSVI.

A family member of mine referred another person for treatment. He was in a chair and bad off. He has now improved to the point where he can do his own transfers. Have also seen reports of previously chair bound people being able to use walkers now.

Where are you located??
jacksonsmommy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (11-13-2010), dmplaura (11-13-2010), Lady (11-12-2010), SallyC (11-12-2010)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
PP multiple sclerosis kicker Multiple Sclerosis 10 12-02-2009 12:13 PM
multiple sclerosis? ConnieS Myasthenia Gravis 15 09-13-2009 02:07 AM
Chronic Cerebro Spinal Venous Insufficiency zapalicious Multiple Sclerosis 11 06-26-2009 02:40 AM
L3 Fracture & Multiple Sclerosis possma Spinal Disorders & Back Pain 0 05-08-2009 04:37 AM
Vitamins and multiple sclerosis Tree55 Vitamins, Nutrients, Herbs and Supplements 2 09-10-2008 06:25 PM


All times are GMT -5. The time now is 06:53 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.