Quote:
Originally Posted by shalynn
I know how frustrating it is to try to get people to understand our illness. I think it's especially hard if we used to be very active people. I find myself trying to live the way I did in the past and I just can't do it anymore. Living like we aren't sick just makes people think there isn't anything wrong even more and it isn't good for us either. I'm really struggling with this now too.
Hang in there!
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I know exactly what everyone means. My employer still don't get it. I pretend there is nothing wrong because I hear "well, I am just as tired as you are." "you look fine to me." I have decided to go back to the way I was before I was diagnosed. It was easier even when on the inside I was in constant turmoil and crying without anyone seeing the tears. I wouldn't be surprised that holding everything in for so long is what actually brought this on since I have just been diagnosed. I decided I would do what I could and if I get tired I will just keep it to myself until I can rest. Just because you look fine on the outside doesn't mean the inside is doing just as well. I don't want to be sick and lay around all the time. I am afraid that will only make matters worse and I will lose the use of my muscles (atrophy). People are beginning to think I am lazy because I was very active. Oh well, can't change what people want to think nor how I feel, so I guess I will just have to keep on trucking or absolutely collaspe. busybusy