I know exactly what everyone means. My employer still don't get it. I pretend there is nothing wrong because I hear "well, I am just as tired as you are." "you look fine to me." I have decided to go back to the way I was before I was diagnosed. It was easier even when on the inside I was in constant turmoil and crying without anyone seeing the tears. I wouldn't be surprised that holding everything in for so long is what actually brought this on since I have just been diagnosed. I decided I would do what I could and if I get tired I will just keep it to myself until I can rest. Just because you look fine on the outside doesn't mean the inside is doing just as well. I don't want to be sick and lay around all the time. I am afraid that will only make matters worse and I will lose the use of my muscles (atrophy). People are beginning to think I am lazy because I was very active. Oh well, can't change what people want to think nor how I feel, so I guess I will just have to keep on trucking or absolutely collaspe. busybusy

Busybody, I do thinks it's all about finding a balance. Don't push yourself too much or else you could have a crises on your hands. I think sometimes we can look at ourselves in the mirror (at least on good days) and can even be tricked into thinking that we don't look that bad and that we should be able to do everything we did in the past.

We do have to make changes in our lives. I think that is what chronic illness has taught me. I'm starting to weed out the things I don't really need to do.

I don't know about anyone else, but I'm finding that Mestinon has made me feel so much better that I tend to over do it. I still need to rest more and think more about the things that I do.

Shalynn