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Old 12-09-2010, 08:31 AM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
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dmplaura dmplaura is offline
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dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Quote:
Originally Posted by dawn64 View Post
That makes me have side effects just thinking about it.
Rightly so too.

Great thread folks. I've not had the 'talk' with my own neurologist, however over a year ago when I quit the DMDs I had said, "Call me when the oral drugs become available". No call from neuro, granted... I've not relapsed either since the first couple months of knowing him, so perhaps I've fallen off the profitable patient meter.

I do think this is a potentially wonderful medication for those who have not had success with DMDs or Ty, or other avenues of treatment, and I do wish you folks all the best going forward.

What disgusts me, and I'm sorry... how many millions are donated each year, public and private, for MS drug research???... is the cost of this medication. Bollocks I say! Where's the patient protection/funding down to the individual in catastrophic drug costs/coverage for this new medication?

It just makes me taste bile to think about it. Not because a new drug's been developed for market. That I think is awesome, even with potential side effects, because it does offer new options and choices for those who can't or couldn't tolerate other medications, but the cost is such a blatant cash grab out of the pockets of the sick, and their families in some cases. Revolting.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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