Quote:
Originally Posted by barb02
Just saw on the CNN medical news site that the FDA has approved finglimod -- the first oral MS drug. They are calling it gilenya. I have mixed feelings about this. I am glad that it has been approved, but nervous about trying a new treatment given my past history with the CRAB's and tysabri. I know the last time I saw my neuro he had mixed feelings about putting me on any new treatment considering my history and the fact that I have been relatively stable.
So who is considering trying it?
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I have never been on a medication for MS. This will be my first. I was only diagnosed a few months ago and am nervous about it all. I ask my neurologist that if this drug is so great, why isn't he putting all his patiens on it? He said that if you are stable he does not want to take them off to try something new.So I guess that confirms again what your dr is saying. I am a little nervous to find out am I going to be one that does great on it or will I be one that has side effects. It better do miracles for me since I will be paying $2,000 month (my part after insurance and novartis pays their part) . That makes me have side effects just thinking about it.
12-09-2010, 03:56 AM
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