Quote:
Originally Posted by busybusy
After I had my test, my husband was in there with me, he asked the doctor who gave the test how will this affect me if it came back positive. He said, " she can live a normal life as always. I have patients that still play football, baseball, and their life has not changed." They are better than I am or either I am more of a whimp. Going to work everyday is just about all I can do. Cooking supper, cleaning, etc before bedtime is out. That certainly isn't the normal life I had before. I ask the same question, what is normal. I missed the boat somewhere.  Desert Flower. I can relate to your post. Something has got to change. I'm tired of being tired and trying to find a better outlet. I'm just tired of people at work thinking "get over it." By gosh, I am trying and heaven forbid don't even think about saying "I am really tired today." Anyway, everyone try to have a good day today and take care of yourself. busy |
The fact that someone with MG plays football or baseball (or tell their neurologists that they do) does not mean that they have a normal life.
I lived a "normal life" for more then 3 years- I continued to work full time as a physician, bring up my two sons, and even go to conferences abroad. but, my life was very far from normal. I would frequently "crash" in the middle of clinic, or have one of my patients ask why I ran up 8 flight of stairs, instead of taking the elevator (needless to say that I reached this level of shortness of breath just from walking from the elevator to him room). etc.
I recently found out that when my WLE neurologist admitted me for plasmapheresis and steroids, he wrote to the plasmapheresis team that if there is no hospital bed available I could easily have it as an out-patient as I am working and was able to fly over, so obviously am not very ill. At that time I was officially working but not much more then that, and required respiratory support after every minor effort, and obviously during a plane flight.
so, I now take it with a grain of salt when neurologists tell me about their patients that play football and lead a completely normal life.
it is true that you can do almost anything you want with MG, the only question is what is going to be the price. so possibly that avid football player spends a few days in bed after each time in order to recover.
the president of the US came to visit Russia. But, what he was most impressed with was a cage in the zoo in which a wolf and a lamb were happily sitting together. How do you do that? he asked. how did you get those two animals to be in the same cage so peacefully. Oh, this is very easy they replied. it depends on how many lambs you are ready to sacrifice.