Quote:
Originally Posted by NANCY W.
Good morning Jakatak. Thanks for posting the article on MGUS.
Just a word about being proactive about your diagnosis.
I was diagnosed with pn 15 or so years ago and went once a year to have a blood draw as directed. Diagnosis never changed but I slowly lost muscle use and feeling in legs/feet. Two years ago I finally insisted that i get a new neurologist and discovered that I had a condition (antimag) THAT COULD BE STOPPED AND IMPROVED.
I post this because I think there are probably lots of folks who aren't getting help because they aren't aware of this fairly new science.
|
My MGUS has stayed at .1 for almost 6 years now. No change. In fact, the numbness and or burning when I do something stupid like have a few drinks...has not progressed beyond my toes. If I wouldn't have had neuroma surgery on both feet....God on knows if I still would be in pain.