Good morning Jakatak. Thanks for posting the article on MGUS.

Just a word about being proactive about your diagnosis.
I was diagnosed with pn 15 or so years ago and went once a year to have a blood draw as directed. Diagnosis never changed but I slowly lost muscle use and feeling in legs/feet. Two years ago I finally insisted that i get a new neurologist and discovered that I had a condition (antimag) THAT COULD BE STOPPED AND IMPROVED.

I post this because I think there are probably lots of folks who aren't getting help because they aren't aware of this fairly new science.

My MGUS has stayed at .1 for almost 6 years now. No change. In fact, the numbness and or burning when I do something stupid like have a few drinks...has not progressed beyond my toes. If I wouldn't have had neuroma surgery on both feet....God on knows if I still would be in pain.

Nancy

It has been 10 weeks since the last of 4 Rituximab treatments.

I can now feel cold tile with my feet. I can also feel the depth of the pile when walking on carpet. My balance has improved significantly. I am no longer walking like a duck after falling asleep in the recliner. I can't believe it. I am still wearing "boots" except the feeling is just above the ankles and not mid thigh like it was 4 months ago. I hope these are all physical changes and not my brain making it up.

Bob

Good morning, Bob. It's been 8 months since I had first infusions of Rituximab and my condition continues to improve VERY SLOWLY. Feeling is returning to feet and ankles and calves and my walking has improved. Walking in cramped spaces and standing still in one place is still hard. I still use a cane for balance if going someplace where there are lots of people and I have to thread my way between them (dept store, art gallery, etc). I saw my neuro doc at OSHU in April and he notes definite improvement. I will not have the results of that blood draw until the next appt in August. At that appt he will tell me when another series of Rituximab infusions is indicated. It looks like maybe at the 1-year mark. I'll post again after the August appt. Regards, Nancy W.