Quote:
Originally Posted by betsykk
I didn't have a lot of time to read all the responses, but can I ask why you have not gone to a Pain Mgmt Doctor? Especiallly when recommended by RSDSA.org? You can be wasting your time and money on neurologists whose subspecialty might have nothing to do with pain. I have found that the best PM doctors are board certificed in Anesthesiology.
My daughter has had RSD for over 2 years. We have tried pretty much everything including Dr Rhodes and Calmare. What has worked for her so far is ketamine. She has had both inpatient and out. The inpatient has left her pain free for now. RSDSA has a list of doctors although it is getting hard to update as more and more doctors are using it. FDA has approved it for breakthrough pain so insurance should cover it; even if you have to appeal. Mine paid for all of it.
Good luck to you.
liz
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I do see the PM doc and have been several times to see one since the start of all this. The problem is...they're trying to figure out what this new stuff is since I had the last block. The PM doc that performed the block got all freaked out and is the one that referred me to the neurologist. My primary care doc referred me to a new PM doc...but she said that she thinks there's something seriously wrong with me that she can't explain (which was why she recommended me going to the hospital). My primary care doc didn't want to help me because I didn't see his crazy chiropracter buddy next door and told me I had to go through the neurologist. Who got me the appointment at Northwestern. That was a waste so now I've seen the chiropracter against my better judgement and will see the primary care doc on Thursday (tomorrow). I have an appointment to see the PM doc next week, but I am really hopeful that my primary care doc will help me. I strongly believe it is something to do with an infection (possibly in my blood stream). That would explain a lot. But more than anything it's just about going forward to find answers.