I didn't have a lot of time to read all the responses, but can I ask why you have not gone to a Pain Mgmt Doctor? Especiallly when recommended by RSDSA.org? You can be wasting your time and money on neurologists whose subspecialty might have nothing to do with pain. I have found that the best PM doctors are board certificed in Anesthesiology.

My daughter has had RSD for over 2 years. We have tried pretty much everything including Dr Rhodes and Calmare. What has worked for her so far is ketamine. She has had both inpatient and out. The inpatient has left her pain free for now. RSDSA has a list of doctors although it is getting hard to update as more and more doctors are using it. FDA has approved it for breakthrough pain so insurance should cover it; even if you have to appeal. Mine paid for all of it.

Good luck to you.
liz