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Old 04-26-2011, 12:09 AM
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DesertFlower DesertFlower is offline
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Join Date: Aug 2009
Location: Tucson, AZ
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DesertFlower DesertFlower is offline
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Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
15 yr Member
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Quote:
Originally Posted by sunshine06330 View Post
I have been searching the web for a good nutrition and what Vits. should I take to help but have failed only to find one diet that completely contridicted by cholestrol diet.
Can you help?
sunshine
There is a lot of misleading information about supplements to take for MG and also everyone is different. You can rarely go wrong with good whole foods. It seems that preservatives and other chemicals in foods can make MG symptoms worse, so it may be a good idea to avoid canned or processed foods.

Always talk to your doctor before you start experimenting with vitamins or major diet changes.

I found it helpful to keep track of everything I ate and also my symptoms. If I suspected something made me worse, I avoided that food for a while. Then I experimented by eating it again to see if it did make me worse. My list of foods to avoid or to eat a lot of has gotten long, but I started by experimenting with one thing at a time. Same with vitamins, although a little more cautiously with vitamins.

When I started taking magnesium vitamins I had some scary overdose symptoms from the Mestinon. Magnesium has a definite positive effect on my MG but it is also a vitamin you have to be cautious with. I don't take magnesium vitamins now but instead eat foods high in magnesium.

It may be helpful to visit a nutritionist or to get tested for some of these vitamins. Many people are deficient in B vitamins or vitamin D.

The things I found the most helpful are, in this order:
-vitamin B12
-vitamin E
-dark green leafy vegetables cooked or raw
-nuts/seeds of all kinds
-water
-magnesium (cautiously and not regularly)
-Omega 3
-Vitamin C (or citrus fruit)
-sunshine
-green tea

Some of the things I've learned to avoid, or minimize (these may include foods that I am allergic to, may have nothing to do with MG)
-processed foods
-chemicals such as pesticides & household cleaners
-wheat, especially refined white flour
-sugar
-stress
-chlorinated water (if I can smell/taste the chlorine I won't drink it)

I'm sure I've missed a few things. My point here is that this is personal for each of us and I don't think there is any one right diet to help with MG. I'd recommend eating good food, even organic food if you can find/afford it, buy raw fruit and vegetables rather than canned when possible. Cook your own food rather than eat prepared foods. Try to avoid junk food.

Eat what works for you.

Something I learned recently that helps, and this is going to sound silly, is bouncing. When I am really weak, I bounce up and down, bending my knees or whatever part is the least weak, sometimes I just move my arms up and down...I think it gets the lymph flowing in the body, maybe clearning out some of those antibodies (my theory, i don't know why this works). If I have energy I jump up and down...I'm thinking about getting one of those little excercise trampolines, maybe getting some kind of rail nearby to hang onto so I don't fall off... I can feel the positive effect from bouncing for a few hours. It feels wonderful. I wish I'd discovered this a while ago.

Sorry for the long entry. It was helpful for me to write all this down. I hope it helps others.

I eat cooked chard or spinache almost every day for breakfast, I am amazed with the results, gives me a boost for the day, reduces that heavy feeling in my arms and legs.

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