Quote:
Originally Posted by tysondouglass
Thanks mike- I'm glad you are getting some benefit from the ivig...it seems to be working less and less for me but who knows! Maybe that's just me. Haha hope your doing well.
Im beginning to think I don't have this disease as I'm left w one drug left to try...
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Tyson, I hope others will correct me if I have this wrong, but the fact that you have responded so dramatically to IVIG proves that you have an autoimmune disease, at least. Even if, by some weird fluke, it's not MG--or not a kind of MG we understand yet--the treatment's going to be basically the same, right?
I have seronegative MG with almost no eye symptoms, and (I've decided) no response to Mestinon. So I get to thinking along these lines, too. I did have a noticeable (though short-lived) response to the IVIG, though, which helps to set my mind at ease about my latest course of treatment (Imuran).
Abby