Thanks mike- I'm glad you are getting some benefit from the ivig...it seems to be working less and less for me but who knows! Maybe that's just me. Haha hope your doing well.

Im beginning to think I don't have this disease as I'm left w one drug left to try...

Tyson, I hope others will correct me if I have this wrong, but the fact that you have responded so dramatically to IVIG proves that you have an autoimmune disease, at least. Even if, by some weird fluke, it's not MG--or not a kind of MG we understand yet--the treatment's going to be basically the same, right?

I have seronegative MG with almost no eye symptoms, and (I've decided) no response to Mestinon. So I get to thinking along these lines, too. I did have a noticeable (though short-lived) response to the IVIG, though, which helps to set my mind at ease about my latest course of treatment (Imuran).

Abby

Tyson tell me more about your Imuran treatment please. How much you take? How long you been on it? Tell me more about this Imuran test they do. I have never heard of it. I take 150mg daily, been on it for 5 months and my Dr wants to increase it but wants to find out why I can't eat. (lost 20 lbs) I really see no results from meds. However I did miss a couple time release Mestinon and both times my right eye closed completely. So I know the meds are helping but I just don't notice it.
Mike

Hey, Tyson, how many times have you had your blood tested for antibodies? Would it be worth asking to be tested again? My neuro has tested me three times already, because he says he has patients who test negative at first, and then positive later. Wouldn't it be great if you could get that positive test, so you'd be OK'd for the new treatment?

Abby

Hey mike- they do an liver function test every month to check the effectiveness. I've been on it 7 months almost 8. So it should have started working I would think..

I've been tested 3 times just had it done before an ivig treatment and it still showed up negative.. So not sure what's up w that. But I agree w the auto immune disease..I just wish I had antibodies I guess