Magnate
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Join Date: May 2007
Posts: 2,998
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Magnate
Join Date: May 2007
Posts: 2,998
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You are a very kind person to be so caring for him. I know our conditions impact our loved ones so I hope you have support too.
I can relate to having little faith in doctors. It sounds like he has tried a lot. Has it all been with one pain doc? Is there a way he could see a psychiatrist that is separate from his pain/neuro doctor? I know it won't take away his physical pain but the mental support may help cope with it better.
I wish I could offer more. It seems not very many know about this treatment which concerns me I guess. I would ask the doctor and I am so cautious but what the success rate is,what happens if he becomes worse,and if you can speak to a couple patients on their experience with it. Obviously the doc will not have you speak to someone who had a bad one but still it can give you more feedback on it. I have mixed feelings on ketamine but has he looked into that?
You said that it took awhile to get dx with rsd but did they do a lot of dx testing to rule out other conditions as well? For ex I have RSD and PN. Others here too have mulitple conditions and sometimes I wonder if that makes treating the pain harder.
Feel better to both of you
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