Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 04-30-2011, 06:43 AM #9
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
daniella daniella is offline
Magnate
 
Join Date: May 2007
Posts: 2,998
15 yr Member
Default

You are a very kind person to be so caring for him. I know our conditions impact our loved ones so I hope you have support too.
I can relate to having little faith in doctors. It sounds like he has tried a lot. Has it all been with one pain doc? Is there a way he could see a psychiatrist that is separate from his pain/neuro doctor? I know it won't take away his physical pain but the mental support may help cope with it better.
I wish I could offer more. It seems not very many know about this treatment which concerns me I guess. I would ask the doctor and I am so cautious but what the success rate is,what happens if he becomes worse,and if you can speak to a couple patients on their experience with it. Obviously the doc will not have you speak to someone who had a bad one but still it can give you more feedback on it. I have mixed feelings on ketamine but has he looked into that?
You said that it took awhile to get dx with rsd but did they do a lot of dx testing to rule out other conditions as well? For ex I have RSD and PN. Others here too have mulitple conditions and sometimes I wonder if that makes treating the pain harder.
Feel better to both of you
daniella is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Desperate Mom Needs Our Help! marcstck Multiple Sclerosis 1 08-31-2010 10:27 AM
Hello! in desperate need of help piag6245 New Member Introductions 14 03-15-2010 12:09 PM
I need desperate help with a med.... tamiloo Medications & Treatments 3 11-08-2008 02:59 AM
New and desperate for help Ruperts_mom23 Thoracic Outlet Syndrome 11 06-20-2007 07:39 PM
New and desperate for help Ruperts_mom23 New Member Introductions 8 06-19-2007 10:40 PM


All times are GMT -5. The time now is 01:26 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.