I'm still on my diagnosis journey...if everything is negative, how did the doctor decide it was still MG? I get the feeling that my doctors (and I've seen 3 neuros who all keep bouncing me around) don't have a clue why I would have symptoms and not test positive. I am an epidemiologist and and I understand the numbers and percentages; I'm not sure how much they put credence into someone's symptoms without some kind of medical sign. It makes me feel like I'm crazy, but why would someone fake increasing weakness/fatigue? I like to run! I like to be active! Why on earth would someone fake this? And how? I'm looking to hear from someone who may have been through something similar. I need some support.
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Originally Posted by craftyRCC
Blondie, welcome to the forum!
I too am sero-negative, you'll find there are many people who are. It is more common than it once was. I've also had a normal EMG & SFEMG. The hot humid weather is the worst, I don't do so well in extreme cold either. My symptoms are generalized, with my arms and legs being weakest. Right now I take Mestinon 4 times daily and vitamins B6, B12, Folic Acid, and Vit D all under the direction of my neuro. Feel free to contact me!!
Rachel
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