Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

View Poll Results: Is there anyone out there that is antibody neg. including Musk for Myasthenia Gravis?
Yes 3 30.00%
Yes
3 30.00%
Yes, its possible 2 20.00%
Yes, its possible
2 20.00%
Yes and I would be willing to contact you. 2 20.00%
Yes and I would be willing to contact you.
2 20.00%
No 3 30.00%
No
3 30.00%
I probably don't have it even though I am being treated as if. 0 0%
I probably don't have it even though I am being treated as if.
0 0%
Multiple Choice Poll. Voters: 10. You may not vote on this poll

 
 
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Old 09-21-2011, 01:41 PM #9
Beannie Beannie is offline
Junior Member
 
Join Date: Sep 2011
Posts: 7
10 yr Member
Beannie Beannie is offline
Junior Member
 
Join Date: Sep 2011
Posts: 7
10 yr Member
Default Negative tests, positive symptoms

I'm still on my diagnosis journey...if everything is negative, how did the doctor decide it was still MG? I get the feeling that my doctors (and I've seen 3 neuros who all keep bouncing me around) don't have a clue why I would have symptoms and not test positive. I am an epidemiologist and and I understand the numbers and percentages; I'm not sure how much they put credence into someone's symptoms without some kind of medical sign. It makes me feel like I'm crazy, but why would someone fake increasing weakness/fatigue? I like to run! I like to be active! Why on earth would someone fake this? And how? I'm looking to hear from someone who may have been through something similar. I need some support.




Quote:
Originally Posted by craftyRCC View Post
Blondie, welcome to the forum!

I too am sero-negative, you'll find there are many people who are. It is more common than it once was. I've also had a normal EMG & SFEMG. The hot humid weather is the worst, I don't do so well in extreme cold either. My symptoms are generalized, with my arms and legs being weakest. Right now I take Mestinon 4 times daily and vitamins B6, B12, Folic Acid, and Vit D all under the direction of my neuro. Feel free to contact me!!

Rachel
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