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Originally Posted by SDMarina
I am experiencing a review after receiving benefits for 8 yrs now. I had no idea that although I was deemed to have a permanent disability that I would still have to now prove I qualify. I keep reading here that a big issue is that you need to see your doctor regularly and take meds. After the first few yrs. of trying different medication "cocktails", nothing improved my condition, Paroxysmal Nocturnal Dystonia (seizures during sleep) There is no treatment for it. In fact all meds that were tried over the years practically turned me into a pharmacy smelling zombie. So, I now have a serious concern that although my condition is static, I will be denied continued benefits because I don't take meds.
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If this is the first CDR you've received in 8 years, then your case was deemed Medical Improvement Not Expected. Still, forms are supposed to be sent out every 5-7 years.
Did you receive the long or short form?
Please refer to this thread I started about CDRs
http://neurotalk.psychcentral.com/thread157557.html
Read the link carefully before returning your form, if you haven't done so already.
Every case is different, don't worry about general info that is not applicable to your situation. Seeing your doctor once or twice a year, would be a good idea regardless of your SSD benefits. How often do you see your primary doc?