Originally Posted by SDMarina

I am experiencing a review after receiving benefits for 8 yrs now. I had no idea that although I was deemed to have a permanent disability that I would still have to now prove I qualify. I keep reading here that a big issue is that you need to see your doctor regularly and take meds. After the first few yrs. of trying different medication "cocktails", nothing improved my condition, Paroxysmal Nocturnal Dystonia (seizures during sleep) There is no treatment for it. In fact all meds that were tried over the years practically turned me into a pharmacy smelling zombie. So, I now have a serious concern that although my condition is static, I will be denied continued benefits because I don't take meds.