Member
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Join Date: Mar 2007
Location: south dakota
Posts: 225
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Member
Join Date: Mar 2007
Location: south dakota
Posts: 225
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Yes, it is simplistic, and I apologize for ruffling so many feelings. I just found out my DX, after a seven year wait, so I assure you I know how you feel in the limbo of uncertainty. The irony of waiting is, of course, once you know, there really is no getting on with your life, you just imagine that's how it will be. But, at least, you can tell your friends you have X or Y or whatever it is. In my case, it is one of the leukodystrophies, Cadasils Disease to be specific. I was originally DX with MS, then three years later I was undiagnosed, and told I had an adult onset of an unknown leukodsytrophy which is the second largest group of people with a white matter disease. So I have experienced all of the groups. I have been undiagnosed, been diagnosed with MS, wished I didn't have it, and then learned to be wary of what you wish for.
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