Yes, it is simplistic, and I apologize for ruffling so many feelings. I just found out my DX, after a seven year wait, so I assure you I know how you feel in the limbo of uncertainty. The irony of waiting is, of course, once you know, there really is no getting on with your life, you just imagine that's how it will be. But, at least, you can tell your friends you have X or Y or whatever it is. In my case, it is one of the leukodystrophies, Cadasils Disease to be specific. I was originally DX with MS, then three years later I was undiagnosed, and told I had an adult onset of an unknown leukodsytrophy which is the second largest group of people with a white matter disease. So I have experienced all of the groups. I have been undiagnosed, been diagnosed with MS, wished I didn't have it, and then learned to be wary of what you wish for.

I think Cricket might be in that first group. She has sx, has had a lot of tests and all she wants is just to have a dx so she can get the respect from the medical world that goes along with it.

Fortunately for me, my neuro gave me a dx of probable MS so I can get the treatment I need. Her and I have talked about the fact that after 10 years, most of the sx are the same and the MRI is exactly the same, just one big ol' bad lesion. So is it still probable MS. But she is content to stay with that dx until something else shows up. So I am content also.

Good luck Cricket.