I know you will think of me as crazy, but did your husband have polio as a kid? What you are describing to me sounds like my husband. It was hard to find a Dr who reconizes it today because its not a TODAY disease. Its an old disease we don't see today. An Older Dr might reconize what is happening. There is Post Polio Syndrom that comes back about 30 to 40 years after they had it. Hope this helps. Good luck.
Bea