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Originally Posted by adelina
Thank you sooooo much hopeful. This is very helpful to hear from poeple I feel that I know. Did you have the very heavy dosage; the ketamine infusions as I am now understanding it? I have only had the injections of Ketamine given over a single hours time and it helped. It sounds like you did the heavy dosage done over multiple hours or days? I only had mild hallucinations during the procedure not after that were not at all bothersome. What sort of hallucinations did you have (if you can tell about it)? So what is your diagnosis then, and did it not help you at all? Did you feel temporary relief or did it make it worse? It sounds like it really wipes you out which can really effect you negativily - that worries me. Thanks again for sharing and please dont mind my intrusion -if i'm to much of a busybody let me know.
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When I started the treatments, they took about 4 hours a day start to finish. I had to do 5 days a week for 2 weeks. Very high doses. Couldn't walk very well after so I always had a family member with me who took me home and put me to bed for the day. Then I think once every two weeks or month for rx for two days. I did go to someone who is very big in The world of Ketamine treaments. Doesn't mean they can't be wrong. Still go for another opinion. I honestly think my doctor told everyone they had RSD. At least that is what I have been told from every doctor I have seen since then in a evasive way. They won't come right out and say it.
This was very early in my PN. I have been told I lost valuable time to be treated properly for my PN due to the fact that the earlier treated the better. Please know I am not bashing the treatments as I said I did see remarkable things for patients with RSD.
As for the hallucinations I don't like to talk about them much. I will give you one example I kept waking up during the night thinking I had hugh spiders crawling on my bedroom ceiling. The one night I was out of bed wide awake telling my husband they were still there. It took a while to calm me down. I had to delete a few of the songs I had on my ipod that I listened to during the treatments. I think they were the ones that seemed to always be playiing while I was coming out.
Again I would have even gone through that if it left me pain free. I'm sure everyone here can understand that. I was new to PN and scared to death.
hope this helps
I am not trying to scare you just being very honest about what happened to me