Thank you sooooo much hopeful. This is very helpful to hear from poeple I feel that I know. Did you have the very heavy dosage; the ketamine infusions as I am now understanding it? I have only had the injections of Ketamine given over a single hours time and it helped. It sounds like you did the heavy dosage done over multiple hours or days? I only had mild hallucinations during the procedure not after that were not at all bothersome. What sort of hallucinations did you have (if you can tell about it)? So what is your diagnosis then, and did it not help you at all? Did you feel temporary relief or did it make it worse? It sounds like it really wipes you out which can really effect you negativily - that worries me. Thanks again for sharing and please dont mind my intrusion -if i'm to much of a busybody let me know.

http://www.youtube.com/watch?v=0p7Zp3c8pvo

interesting link of a patient being interviewed. Its very worthwhile telling the doc if you have sleep apnia.

The chap in the vid is suffering a great deal of pain, you can see his toe nails are several inches long. They are talking about placing him in a coma for the treatment

Yes this is Dr Kirkpatrick the doctor I was talking about the videos. This gentleman was not able to have the ketamine and had to go ip but Dr K has others that did have it and shows them while under.
In terms of dose they monitor you so that they can adjust doses I think. From what I researched it is so key to work with someone who does a lot of ketamine infusions because it is so key to have the right dose or it does not work etc.
Like hopeful said and I did I really feel extra opinions are important. When ever I hear I will be pain free or fine by a doctor I don't believe it because I heard that a few times over the past 5 years and am not. Sorry to be a debbie downer but have to be realistic and cautious too.
Feel better

When I started the treatments, they took about 4 hours a day start to finish. I had to do 5 days a week for 2 weeks. Very high doses. Couldn't walk very well after so I always had a family member with me who took me home and put me to bed for the day. Then I think once every two weeks or month for rx for two days. I did go to someone who is very big in The world of Ketamine treaments. Doesn't mean they can't be wrong. Still go for another opinion. I honestly think my doctor told everyone they had RSD. At least that is what I have been told from every doctor I have seen since then in a evasive way. They won't come right out and say it.
This was very early in my PN. I have been told I lost valuable time to be treated properly for my PN due to the fact that the earlier treated the better. Please know I am not bashing the treatments as I said I did see remarkable things for patients with RSD.
As for the hallucinations I don't like to talk about them much. I will give you one example I kept waking up during the night thinking I had hugh spiders crawling on my bedroom ceiling. The one night I was out of bed wide awake telling my husband they were still there. It took a while to calm me down. I had to delete a few of the songs I had on my ipod that I listened to during the treatments. I think they were the ones that seemed to always be playiing while I was coming out.
Again I would have even gone through that if it left me pain free. I'm sure everyone here can understand that. I was new to PN and scared to death.
hope this helps I am not trying to scare you just being very honest about what happened to me

Mrs D or anyone do you take the asprin everyday? I know my parents do for the heart I think baby ones? If you are younger though is taking asprin everyday ok and if it not for the heart? How much is one supposed to take for anti inflammatory?
Sorry to ask question on your thread
Hopeful I am sorry you were misdx. I know one pain doctor I saw who was trying to identify what was causing me the pain the PN or RSD said some doctors will just dx with RSD when it is not but when they can't find another cause. I know when I looked into ketamine after you were supposed to stay with someone so they could monitor you. The hallucinations seem to vary a lot from person to person. Hopeful if you don't mind could you PM with who you saw?

Hi daniella my neuro just started me on 2000mg of fish oil and 325mg of aspirin daily for the inflammation I have. I don't know if this is what everyone takes though - but it is what comes standard OTC. I have only been on it for two days though, no reports of an effect yet .

Thanks yea I take fish oil supp and flaxseed too. I think these things take a long time to work. Someone can correct me if I am wrong but just like diet changes etc.
Hope you feel better

Wow hopeful that is astonishing, thank you so much for sharing what you did with me. Because you have been with me through much of what I have been going through lately and the support and information that you give, I really respect your opinion. So the feedback on these intensive treatments that you give really helps me - so thank you very much for taking the time to write/type that all out! It is full of good observations. I don't know if that is where I will end up, but I do know my pm dr. is hinting at it. You have made me feel a lot more comfortable at least considering the idea - because yes, if I could be pain-free too, I would do it. But I also do not have RSD, so... we'll see.

I am really, really sorry you had to go through all that though. It is tragic that you go caught by one of those dr.s that is more interested in the procedure than the patient. As I read your post it was so hard to think about what time and resources you had wasted, as well as the anguish you must have felt when it did not work. I am so sorry that it went that way for you. You have been such a supportive person for me I wanted you to know that it wasn't all for 'naught; because you see, if you hadn't gone through it you couldn't help myself and others here. I am sure that is not enough to make it worth-while before the fact, but maybe after the fact you can see the benefit of having gone through for the rest of us! thanks!