Quote:
Originally Posted by Sheltiemom18
Back in July of 2010 when still dealing with pretty much constant overall burning non-length dependent small fiber neuropathy that began in January 2010, I saw the title of this thread and said, "Yeah, right."
Now it's February of 2011. And there's been no more burning since sometime in the fall, just some residual skin sensitivity which means still not being able to wear certain clothing (fabrics).
The neuropathy is still there but to a much lesser degree. I've been told the cause of mine is Sjogren's Syndrome.
So glad I found this forum and decided to go for the recommended supplements (thanks to MrsD's posts) for these reasons:
1. Bad reactions to neurontin and Lyrica; and
2. MrsD knows what she's talking about.
As Sjogren's is incurable, the neuropathy will probably always be there to some extent. There's dizziness, a little loss of balance, etc. and a lot of photosensitivity (from Sjogren's), but overall doing so very much better. Just keeping my fingers crossed and continuing the supplements.
Sheltiemom18
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I am relatively new in this forum. I would really appreciate if you can direct me to the post where Mrs. D listed the kind of foods/diets/supplements/vitamins for Peripheral Neuropathy.
I was diagnosed with idiopathic Peripheral Neuropathy, after having been tested with all sorts of tests. I am willing to try everything just to get relief from this terrible and horrible pain. Like you, even the softest clothing give me pain. I have stabbing, prickly, jabbing, lacinating pain in both my legs and arms. My feet are also painful that it hard to stand and walk.
Do you also feel that intermittent sensation of coldness that creates "goose pimples" in your skin?
Would appreciate your reply.
Thanks.