Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 02-22-2012, 09:55 PM #11
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Default

Quote:
Originally Posted by Sheltiemom18 View Post
Back in July of 2010 when still dealing with pretty much constant overall burning non-length dependent small fiber neuropathy that began in January 2010, I saw the title of this thread and said, "Yeah, right."

Now it's February of 2011. And there's been no more burning since sometime in the fall, just some residual skin sensitivity which means still not being able to wear certain clothing (fabrics).

The neuropathy is still there but to a much lesser degree. I've been told the cause of mine is Sjogren's Syndrome.

So glad I found this forum and decided to go for the recommended supplements (thanks to MrsD's posts) for these reasons:

1. Bad reactions to neurontin and Lyrica; and

2. MrsD knows what she's talking about.

As Sjogren's is incurable, the neuropathy will probably always be there to some extent. There's dizziness, a little loss of balance, etc. and a lot of photosensitivity (from Sjogren's), but overall doing so very much better. Just keeping my fingers crossed and continuing the supplements.

Sheltiemom18
I am relatively new in this forum. I would really appreciate if you can direct me to the post where Mrs. D listed the kind of foods/diets/supplements/vitamins for Peripheral Neuropathy.

I was diagnosed with idiopathic Peripheral Neuropathy, after having been tested with all sorts of tests. I am willing to try everything just to get relief from this terrible and horrible pain. Like you, even the softest clothing give me pain. I have stabbing, prickly, jabbing, lacinating pain in both my legs and arms. My feet are also painful that it hard to stand and walk.

Do you also feel that intermittent sensation of coldness that creates "goose pimples" in your skin?

Would appreciate your reply.
Thanks.
Idiopathic PN is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
paraneoplastic/SF-non lenght dependent neuropathy/demyelinating neuropathy pelztier86 Peripheral Neuropathy 16 05-21-2013 12:16 PM
Small Fiber Neuropathy (or Length-Dependent Neuropathy) plgerrard PN Tips, Resources, Supplements & Other Treatments 1 05-09-2010 06:56 AM


All times are GMT -5. The time now is 12:19 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.