Quote:
Originally Posted by catra121
Your progress with tDCS is such a great thing to hear! I am very happy to hear that you and the person you recommended it to are both responding well to the treatment. It gives me hope that I may eventually not need to use my walker (or that I may at least not need to use it around the house). I think your goal of being able to use the cane is a very good one. I find I do much better with therapy and treatments when I set a goal for myself.
Sometimes when you are still new and don't have many posts there is a delay before your post will appear on the board...at least I think that's what I remember from back when I first joined. It goes away once you have a certain number of posts and then the posts appear immediately. Definitely try to post on the tDCS thread that was started by ballerina because, at least for me, that is where I go back to for reference. I will be starting treatments as soon as my lead wires arrive...there was a delay in getting them but it should be within the next few days. I would be interested to know what electrode placements seem to be working best for you and (if you know) what worked for the person you recommended tDCS to. I know it will be a little bit of trial and error but I am curious so that I have a plan of attack in mind as I go.
Again...I am very happy to hear that you are progressing well and that tDCS works for you. I think it's crazy that the hospital would try to prevent you from doing a treatment which works for you. But glad you found a way to make it work.
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Dear Catra,
I am so glad I will have someone to compare notes with who is treating with tDCS and hoping to be walker free.
In terms of electrode placement everyone is different. If you don't yet have a solid knowledge basis I highly suggest doing some extensive research focusing on clinical trials of tDCS. I followed Ballerina's suggestions of reviewing journal articles dealing with my types of pain and pain location. If you do this kind of homework you are not just throwing darts at a board.
The man who I know who is also treating with tDCS tried my electrode placement and it was totally ineffective. He was quite discouraged and almost abandoned the treatment, causing me great anxiety since I had assertively recommended a spinal cord stimulator to him and his condition, although improved initially, became much worse.
The second electrode placement he tried worked well for him. That same placement does nothing for me.
Where did your CRPS begin? Has it spread? What are your sources for determining electrode placement?
My progress is very good. I believe the main thing that is holding me back from graduating to a cane is the ravages of muscle wasting. It sets in so quickly. The tDCS is reversing that. I know it is only a matter of time before I get that muscle tone back.
I hope you find relief with tDCS!