Quote:
Originally Posted by CRPSjames
I have not gotten the hang of navigating the forum yet. I posted something but it ended up on a thread different than I selected. I am guessing that I should have still been using this thread since I am new.
Anyway, I am providing feedback that I hope helps someone else out.
I continue to make progress from the CRPS spread due to having a Spinal Cord Stimulator. I am now off all narcotics!!!! Withdrawal was a very rough road. For anyone considering this process please take it very seriously.
I was hospitalized, still had a rough time and they forbid me to use my tDCS device. (No problem, the nurse who confiscated it sent it home with a compliant relative who promptly sent it back with a friend who stood guard at the bathroom door for my treatment and arranged a schedule of friends and relatives to do the same for the duration of my stay)
What a difference it is being off of Fen patches and other mind-clouding drugs. I didn't know how my thinking had been so badly compromised.
Thanks to tDCS I am now setting my next goal on using a cane. I inherited my great grandfather's cane that he carved and it is now hanging by the door. I hope one day to walk out the door with it.
The other news is that someone I met at the doctor's office, who also has CRPS, has had the same reaction to the SCS that I had, is now using tDCS. Since I felt very bad about wholeheartedly recommending the SCS to him I initially thought I would be the last person on earth he would want to hear a suggestion from. While in the PT's office his wife was being treated in the next bed and saw my amazing progress and the rest is history. He was very slow to respond and in fact for the first two weeks had no response. He changed electrodes positions over the weekend and is now responding well to the treatment.
Now that I am through the whole med withdrawal thing I will keep posting my tDCS progress. I am currently treating three times a week, once a day for twenty minutes, next week I will be dropping one day and so on until I stop treating.
Does anyone know how long I should post in this area before trying another thread? Does anyone know why one post went to the wrong thread and why another vanished as I was typing it? (Maybe I was too slow typing using one hand-I now use voice recognition)
Thank from a newbe!
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Your progress with tDCS is such a great thing to hear! I am very happy to hear that you and the person you recommended it to are both responding well to the treatment. It gives me hope that I may eventually not need to use my walker (or that I may at least not need to use it around the house). I think your goal of being able to use the cane is a very good one. I find I do much better with therapy and treatments when I set a goal for myself.
Sometimes when you are still new and don't have many posts there is a delay before your post will appear on the board...at least I think that's what I remember from back when I first joined. It goes away once you have a certain number of posts and then the posts appear immediately. Definitely try to post on the tDCS thread that was started by ballerina because, at least for me, that is where I go back to for reference. I will be starting treatments as soon as my lead wires arrive...there was a delay in getting them but it should be within the next few days. I would be interested to know what electrode placements seem to be working best for you and (if you know) what worked for the person you recommended tDCS to. I know it will be a little bit of trial and error but I am curious so that I have a plan of attack in mind as I go.
Again...I am very happy to hear that you are progressing well and that tDCS works for you. I think it's crazy that the hospital would try to prevent you from doing a treatment which works for you. But glad you found a way to make it work.
02-24-2012, 09:42 AM
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