Sorry about your pain. I think I have rsd in my eyes though it is hard to get a dx of it in your eyes. About 6 months after dx in my legs I developed severe eye pain,pressure,etc. Over the next year I went to 50 eye apts,10 eye specialists,many meds,tests. I also started having ear pain that would go into the eye and so much pressure. I went back to my neurologist because I have PN as well and he did an mri of brain/ear. Plus I had scans of my eye. The eye specialists did dx with bleph and dry eye but felt I should not be in the crying pain I was. The mri showed nothing. Over the years it has gotten to a better place and I am not sure from what since my rsd areas have been so bad lately. I still have pain but not to the extreme. I get flares though of worse times
As for you some meds can cause eye and facial I think problems too. Have you looked into that?Have you talked to your treating doctors since you do have other dx about this? For me I have PN and RSD so know sometimes it is hard to not what is causing what.
I wish I could offer more. Hope you can get relief