Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-27-2012, 03:02 AM #1
daniella daniella is offline
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daniella daniella is offline
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Sorry about your pain. I think I have rsd in my eyes though it is hard to get a dx of it in your eyes. About 6 months after dx in my legs I developed severe eye pain,pressure,etc. Over the next year I went to 50 eye apts,10 eye specialists,many meds,tests. I also started having ear pain that would go into the eye and so much pressure. I went back to my neurologist because I have PN as well and he did an mri of brain/ear. Plus I had scans of my eye. The eye specialists did dx with bleph and dry eye but felt I should not be in the crying pain I was. The mri showed nothing. Over the years it has gotten to a better place and I am not sure from what since my rsd areas have been so bad lately. I still have pain but not to the extreme. I get flares though of worse times
As for you some meds can cause eye and facial I think problems too. Have you looked into that?Have you talked to your treating doctors since you do have other dx about this? For me I have PN and RSD so know sometimes it is hard to not what is causing what.
I wish I could offer more. Hope you can get relief
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Old 02-27-2012, 08:18 AM #2
alaska49 alaska49 is offline
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I too have RSD in my face and eyes it got so bad the swelling hemoraged in the back of my eye my mom was so scared as it looked like my eye was popping out if my face. I wish I could say there is an easy way to diagnose or treat it. I have full body RSD, sarcoidosis of the live and lungs, hypothyroidism, and thyroid cancer. The RSD in my face I treat just the same as my other rsd if it gets bad then I go to the ER. Prednisone a steroid does help when I have lots of swelling now I am on it all the time to reduce the swelling in my liver and lungs but if it gets worse then they up the dose while in the hospital as if they give it at home I have other complications. Many eye specialists arent going to be the ones to diagnose the rsd as they didnt with me in stead they thought I haed a sudo tumor of the brain where spinal fluid fills up and puts preasure on the eyes but of course that wasnt it.

Sam
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