Quote:
Originally Posted by en bloc
Actually, up to 40% of Sjogren's patients are sero-negative...staggering numbers.
You will find many different opinions on positive labs (and when they occur) with autoimmune diseases. Bottom line is that autoimmune diseases are still very poorly understood. There are MANY out there who flare or are in active states of disease, yet still sero-negative. Sometimes (I have read) medicines or other conditions might be the reason labs are negative. I have always been negative for Sjogren's yet, my disease was confirmed by lip biopsy and is in advanced stages.
I'm happy for you that you'll get some answers now and that makes treatment SOOO much easier and more effective.
When is your appt with the rheumatologist? Please keep us posted on the incoming labs.
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I have an appointment with the GP on Tuesday, and she will be writing the referral then. Since it is a large clinic, I am sure I won't have to wait too long for the rheumatologist.
That is incredible about your Sjogren's! It further proves that the blood tests are very flawed. Is that disorder responsible for your PN? Is it something that you can be treated for? I am glad that you had a doctor willing to provide the biopsy, as I know how hard it is to get testing done.
I sincerely hope that everyone finds answers. Our stories are so similar, with unexplained pain/issues, and being put off by physicians when the tests come back "normal."
I do understand that these abnormal labs only start the conversation. I know I have a journey ahead for the right diagnosis, but I'm just thrilled that I have evidence that proves it's not psychological!