Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 05-20-2012, 10:40 PM #12
Agirlandhertort1 Agirlandhertort1 is offline
Junior Member
 
Join Date: Apr 2012
Posts: 38
10 yr Member
Agirlandhertort1 Agirlandhertort1 is offline
Junior Member
 
Join Date: Apr 2012
Posts: 38
10 yr Member
Default

Quote:
Originally Posted by en bloc View Post
Actually, up to 40% of Sjogren's patients are sero-negative...staggering numbers.

You will find many different opinions on positive labs (and when they occur) with autoimmune diseases. Bottom line is that autoimmune diseases are still very poorly understood. There are MANY out there who flare or are in active states of disease, yet still sero-negative. Sometimes (I have read) medicines or other conditions might be the reason labs are negative. I have always been negative for Sjogren's yet, my disease was confirmed by lip biopsy and is in advanced stages.

I'm happy for you that you'll get some answers now and that makes treatment SOOO much easier and more effective.

When is your appt with the rheumatologist? Please keep us posted on the incoming labs.
I have an appointment with the GP on Tuesday, and she will be writing the referral then. Since it is a large clinic, I am sure I won't have to wait too long for the rheumatologist.

That is incredible about your Sjogren's! It further proves that the blood tests are very flawed. Is that disorder responsible for your PN? Is it something that you can be treated for? I am glad that you had a doctor willing to provide the biopsy, as I know how hard it is to get testing done.

I sincerely hope that everyone finds answers. Our stories are so similar, with unexplained pain/issues, and being put off by physicians when the tests come back "normal."

I do understand that these abnormal labs only start the conversation. I know I have a journey ahead for the right diagnosis, but I'm just thrilled that I have evidence that proves it's not psychological!
Agirlandhertort1 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
en bloc (05-21-2012)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
inflammation freezerdoor Traumatic Brain Injury and Post Concussion Syndrome 22 06-13-2012 09:17 AM
Inflammation and PD reverett123 Parkinson's Disease 0 03-23-2011 02:20 PM
inflammation, BBB, and Alz. lurkingforacure Parkinson's Disease 0 07-13-2009 10:31 PM
Inflammation reverett123 Parkinson's Disease 3 10-15-2008 01:38 PM
Inflammation Marlene Peripheral Neuropathy 16 10-29-2007 09:00 AM


All times are GMT -5. The time now is 11:16 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.