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Originally Posted by en bloc
This sounds like classic autonomic dysfunction. Your appt with the cardiologist is a good idea. He can address the syncope (your BP may be dropping as you stand or bend over) as well as the QT interval and mitral valve. A heart rate in the 30 can also be related to dysautonomia...unless you are a marathon runner or something similar (in extremely great shape)
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Yes, I am (well was!) a elite/pro level athlete
, although I haven't been training and competing much the past couple years
. The issues I have been having this year have made it impossible to even remotely ride or train at that level. Anyway, the low heart rate is normal for me
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Do you take any other medicine, where side effects might be causing your symptoms?
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No, not even over the counter stuff (I have a bit of fear of medicine)
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Originally Posted by Sallysblooms
I have an integrative doctor that DOES thankfully. Sometimes it takes a lot of work to get all of the answers. I have researched for years. We do have to help ourselves also. I have certainly figured that out since I have CFS and POTS-Dysautonomia. Before that, another rare problem that ended up with surgery on my head to cut one of my vestibular nerves. A nightmare.
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I seen a general physician today, seemed like a nice guy. I was a bit frustrated because he didnt seem to see the 'big picture', and seemed to want to ignore a bunch of my symptoms. He did admit though that although he has some theories, he does not know what is wrong, and that this is something that is going to take time and a lot of tests to figure out. He has a bunch of tests lined up for me (once I get medical assistance to pay for it)
I am not sure I will ever get a full proper diagnoses that explains all my issues, since my medical history from birth is so complicated, and shot full of holes.
To sum up a bit, from birth I had developmental issues, dx of autism at age 6, years of different therapies (threw school system), dx of numerous learning disabilities, have speech/communications issues (use alt communication), sensory integration issues, motor tics, aura migraines.... add the fact that I lived in a abusive house, were poor with no health insurence. I didnt get the proper help that I needed, and my parents had lost most of the paperwork that talked about my childhood dxes, and could have cared less to remember any of it.
Past issues seem to be irrelevant to doctors, who only want to take into account the current symptoms, and if I dare mention that I have a autism dx, I get treated and talked to like a kid, and not taken remotely serious