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Old 05-21-2012, 06:01 AM #1
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Quote:
Originally Posted by roadracer View Post
Thanks!

My heart rate seems to be good, just sitting around it is in the low 50s, and when laying down it dips down into the high 30s.
My blood pressure seems to be fluctuating from to high to to low when it is tested (I dont have a way to test it at home).
I get the blackouts when I stand and start walking or when I bend down. Standing up fast then sitting back down makes my heart feel like its going to explode!
I have also had episodes where it feels like my heart is fluttering, and times it feels like it is beating one really hard beat, like it is punching me
This sounds like classic autonomic dysfunction. Your appt with the cardiologist is a good idea. He can address the syncope (your BP may be dropping as you stand or bend over) as well as the QT interval and mitral valve. A heart rate in the 30 can also be related to dysautonomia...unless you are a marathon runner or something similar (in extremely great shape)

Do you take any other medicine, where side effects might be causing your symptoms?
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Old 05-21-2012, 10:37 AM #2
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My cardio doc said my heart was fine, did testing. I was incredibly ill with my POTS/Dysautonomia. We had no idea why I could not sit or walk etc. Well, the doc had no idea either...Thankfully he went to ask another doctor in the same office who said it could be Dysautonomia. Then he told me that is a possiblity. BUT, he didn't know what to do.

I have an integrative doctor that DOES thankfully. Sometimes it takes a lot of work to get all of the answers. I have researched for years. We do have to help ourselves also. I have certainly figured that out since I have CFS and POTS-Dysautonomia. Before that, another rare problem that ended up with surgery on my head to cut one of my vestibular nerves. A nightmare.
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