I wish I had better news. I wish your doc was right. But I have CRPS II, and I can confirm, and there is no doubt about this, that mine has definitely spread. Although it has taken many years for mine to spread. Mine started with a nerve injury during back surgery, waking from surgery with it in my right foot, ankle with excruciating pain and with numbness in my calf. After about 6 years later my other foot and ankle started to mirror the symptoms. Gradual at first. Many months of little twings, then about a year into the spread it was nearly as bad as the original limb. 18 months or so and I was starting to get twings everywhere. Everywhere! Some more severe then others. But those other places above the waist are always random on when and where they strike and how severe it will be. But both legs & feet are a serious problem now. I will say this though, the CRPS is still most prevalent in the original site (first foot/ankle/leg to be afflicted). But the second leg/foot is running a close second. Go to google scholar and search RSD CRPS Spread.

I do hope this is not the case for you and perhaps it is something else. But I knew with mine. It was faint at first, but after some time, and worsening, I knew and for sure there is no doubt now. xoxo