I wish I had better news. I wish your doc was right. But I have CRPS II, and I can confirm, and there is no doubt about this, that mine has definitely spread. Although it has taken many years for mine to spread. Mine started with a nerve injury during back surgery, waking from surgery with it in my right foot, ankle with excruciating pain and with numbness in my calf. After about 6 years later my other foot and ankle started to mirror the symptoms. Gradual at first. Many months of little twings, then about a year into the spread it was nearly as bad as the original limb. 18 months or so and I was starting to get twings everywhere. Everywhere! Some more severe then others. But those other places above the waist are always random on when and where they strike and how severe it will be. But both legs & feet are a serious problem now. I will say this though, the CRPS is still most prevalent in the original site (first foot/ankle/leg to be afflicted). But the second leg/foot is running a close second. Go to google scholar and search RSD CRPS Spread.

I do hope this is not the case for you and perhaps it is something else. But I knew with mine. It was faint at first, but after some time, and worsening, I knew and for sure there is no doubt now. xoxo

I started this thread in February of last year. Since then it has been confirmed that not only did my RSD spread but it was also the culprit for almost all of my new symptoms (the others being caused by the meds the doctors were putting me on and off of like crazy people). Haven't seen the neurologist I was talking about since last April I think it was...nor my primary doctor or the pain management doctor I was seeing at the time. I think back to all the runarounds I got from the docs back then and it makes me so very angry. Reading my responses from 2011, I see that I was way too quick to try and defend and make excuses for doctors. Not the case anymore. Quite frankly...if they don't know what they are talking about then they should not make comments like he made...plain and simple. Whether his field or not, he was giving a patient bad information and if I had stayed with him I don't think I would have ever gotten proper treatment for the condition that I really DO have. Moron is right...which my new doctor confirmed when I told her that he was the neurologist I saw. Apparently he told several of her patients in the past that there was no hope, that they would die or never get better, all neurological things. They went and got second opinions and recovered or managed to live many many more years. I tell you...doctors like that are SO dangerous.