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Originally Posted by Vrae
I went to the ER for basically the same thing. I specifically asked for a doc at the ER that knew something about RSD. I had to wait quite a while for him, but it was worth it. He told me that it was the Vegus nerves that the RSD was effecting. Meds given Gabapentin, Valium, Percocet, and if it the pain gets out of hand then IV Dilaudid. The trick as I know you know, is to stay ahead of the pain, otherwise it takes more big gun drugs to turn it back around. As far as a permanent solution… I do not know of one. But I do understand. It effects my teeth, gums, jaw, eyes, neck… absolutely no fun. So sorry hon. Hope you get relief soon!
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Thanks Vrae! I got part of my meds, and I'm going to try and get in for a sympathetic block asap. The jaw issue seems to have taken hold. My teeth and tongue calmed down once the meds hit my system. I'm wearing a strip of Lidoderm patch taped over my jaw. It seems to be helping somewhat...
Your info is greatly appreciated! It's by far the worst area I've ever had to deal with spread.