Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-20-2012, 02:32 PM #1
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Originally Posted by LIT LOVE View Post
I'm in bad shape and have avoided the ER over the years, but due to insurance issues, this is my best option currently to try and stop new spread.

Thanks in advance.
I went to the ER for basically the same thing. I specifically asked for a doc at the ER that knew something about RSD. I had to wait quite a while for him, but it was worth it. He told me that it was the Vegus nerves that the RSD was effecting. Meds given Gabapentin, Valium, Percocet, and if it the pain gets out of hand then IV Dilaudid. The trick as I know you know, is to stay ahead of the pain, otherwise it takes more big gun drugs to turn it back around. As far as a permanent solution… I do not know of one. But I do understand. It effects my teeth, gums, jaw, eyes, neck… absolutely no fun. So sorry hon. Hope you get relief soon!
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Old 09-20-2012, 05:06 PM #2
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I went to the ER for basically the same thing. I specifically asked for a doc at the ER that knew something about RSD. I had to wait quite a while for him, but it was worth it. He told me that it was the Vegus nerves that the RSD was effecting. Meds given Gabapentin, Valium, Percocet, and if it the pain gets out of hand then IV Dilaudid. The trick as I know you know, is to stay ahead of the pain, otherwise it takes more big gun drugs to turn it back around. As far as a permanent solution… I do not know of one. But I do understand. It effects my teeth, gums, jaw, eyes, neck… absolutely no fun. So sorry hon. Hope you get relief soon!
Thanks Vrae! I got part of my meds, and I'm going to try and get in for a sympathetic block asap. The jaw issue seems to have taken hold. My teeth and tongue calmed down once the meds hit my system. I'm wearing a strip of Lidoderm patch taped over my jaw. It seems to be helping somewhat...

Your info is greatly appreciated! It's by far the worst area I've ever had to deal with spread.
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Old 09-20-2012, 11:35 PM #3
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Thanks Vrae! I got part of my meds, and I'm going to try and get in for a sympathetic block asap. The jaw issue seems to have taken hold. My teeth and tongue calmed down once the meds hit my system. I'm wearing a strip of Lidoderm patch taped over my jaw. It seems to be helping somewhat...

Your info is greatly appreciated! It's by far the worst area I've ever had to deal with spread.
Glad to hear you were able to get some meds. I hope you feel better real quick! It really does suck and is so painful! So Sorry hon.
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Old 09-22-2012, 01:04 PM #4
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I haven't been to the er since being diagnosed with rsd.

I don't want them to think I am seeking drugs as I am already on all kinds of medications....I figure there's not much more they can do for me.

I usually just suffer though whatever is going on, take my meds, go to bed, and wait to see what tomorrow brings.

Sigh....
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Old 09-26-2012, 02:41 AM #5
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Default I want to add....

Be cautious of the sympauthetic nerv block. weigh your options carefully.i understand your options are limited but I say this because I had a sympathetic nerve block and I regret it wendy day.not to say you will because as we all know everyone responds differently I would just be cautious.i wish you the best.
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Old 09-26-2012, 05:11 PM #6
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Be cautious of the sympauthetic nerv block. weigh your options carefully.i understand your options are limited but I say this because I had a sympathetic nerve block and I regret it wendy day.not to say you will because as we all know everyone responds differently I would just be cautious.i wish you the best.
I've had many blocks, over many years, and always responded well.
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