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Old 09-29-2012, 03:18 PM
hajile99 hajile99 is offline
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Join Date: Aug 2012
Location: Las Vegas, Nevada
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10 yr Member
hajile99 hajile99 is offline
Junior Member
 
Join Date: Aug 2012
Location: Las Vegas, Nevada
Posts: 70
10 yr Member
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Quote:
Originally Posted by alice md View Post
We can't blame neurologists for being content with the way things are, when we as patients who receive such treatment are content with it.
I think this is probably the key to everything you just discussed, Alice. As patients dealing with MG, as in any other disease, we are our best advocates. Simply being content with the existing treatment options and the lack of research done on MG does nothing but perpetuate and exacerbate the struggles we go through on a day-to-day basis. Not only do we, as patients, have to be our own advocates, but we need to create a greater awareness to the disease in order to further interest in the study of it.

I guess the real question, is how do you go about creating awareness? And how do you translate that awareness into further research and study of the disease?
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"Thanks for this!" says:
alice md (09-29-2012)